Having a baby that might be born with a condition

If you continue with your pregnancy after screening has found something, you might need extra care.

The care you and your baby need depends on the condition they have.

Support is available for any condition your baby has.


Speak to a doctor or midwife to get as much information as possible about your baby's condition and what treatment they might need.

Your pregnancy care

You'll be offered all the regular checks and tests everyone has when they're pregnant.

And you'll be cared for by a team that's specially trained to support you and your baby's needs.

But depending on your baby's condition and what's available in your area, you may need to:

You can bring your partner, a family member or friend with you.

It might help to write down any questions you have before you go.

You could ask things like:

Your birth plan

Everyone who's pregnant can make a birth plan. You'll usually talk this through with a midwife early in your pregnancy.

You can talk about:

Find out more about making a birth plan

But depending on your baby's condition, you may need to make changes to your plan.

The charity SOFT UK can help you with making a birth plan if your baby might be born with a condition

Giving birth

You may have a higher chance of going into labour early. Or your baby may need more support when they're born.

This may mean you'll need to:

Speak to a doctor or midwife to find out your options.

The team are there to make sure you and your baby have all the support you need.

Read about what happens during labour and giving birth

After your baby is born

What happens after your baby is born depends on their condition and how severe it is. Your baby may need to:

A doctor or midwife will explain the next steps for your baby's care.

Support is available

It can help to speak to:

Charities that can help

Antenatal Results and Choices (ARC)

Down's Syndrome Association

Home Start – for families with young children that need support

Shine – for families affected by spina bifida and hydrocephalus

Sickle Cell Society

SOFT UK – for families affected by Patau's and Edwards' syndromes